General Medical issues thread

[JohnK]

Anyone had experience with prednisolone? I'm supposed to call her next time I flare which I did recently and go on a course. Plus will need treatment for raynauds to prevent ulcers and then there's possible psoriasis. Most of these things can be treated with methotrexate. And steroi_s. Lucky I'm healthy. Well. Healthy when I started.

Mum has been taking them for a long time. Mum takes them when the inflammation is bad and they help her.

 

[Pushka]

Mum has been taking them for a long time. Mum takes them when the inflammation is bad and they help her.

Thanks JohnK. That's what my niece told me too. I'll save them for when I am desperate. Damn, there goes my chance of competitive sport!

 

[drron]

Pushka you will have to move to FNQ or Darwin.
Just think of all the FF points you will earn visiting your specialist.:shock:

 

[whatmeworry]

Whenever I hear auto immune condition.

 

[Milboo]

I've used Pred a couple of times - once when I had a weird flare up and then post back injury. I had no issues with it and really noticed it's benefits (nothing ached!).

I used it on a long term regime with my dog with his immune mediated condition and it was very effective (sorry I know it is not a like for like comparison!).

It can have a bad name and yes it has side effects but it is a very effective drug and those benefits can outweigh the downside.

 

[whatmeworry]

Study linking pain killers like ibuprofen to increased heart attack risk.

A fresh study suggests there may be a link between taking high doses of common anti-inflammatory painkillers - such as ibuprofen - and heart attacks.
The paper, published in The BMJ, builds on a previous body of work linking these drugs to heart problems.
This research suggests the risk could be greatest in the first 30 days of taking the drugs.
But scientists say the findings are not clear cut. They say other factors - not just the pills - could be involved.

'Heart attack risk' for common painkillers - BBC News

 

[suze2000]

Unexpected results from blood test.

Coming in insanely late to this, but first thing I would do is have the blood tests redone. It's rare but not impossible for the lab to have stuffed up your sample.

 

[love_the_life]

Thanks JohnK. That's what my niece told me too. I'll save them for when I am desperate. Damn, there goes my chance of competitive sport!

What competitive sport were you thinking of?
You could consider fencing?????

 

[Pushka]

Whenever I hear auto immune condition.

View attachment 97214

The scary thing is last year I watched all the episodes. And understood what they were saying and when they goofed up. Dr House was frequently mentioned at the Lupus conference. He's quite legendary in the auto immune circles.

Drron, for the first time ever I'm feeling the cold. Used to hate summer and that's reversed. At least I no longer get night sweats. Always used to wear summer pjs throughout the year. Now I'm looking at wearing an overcoat!

Coming in insanely late to this, but first thing I would do is have the blood tests redone. It's rare but not impossible for the lab to have stuffed up your sample.

I thought that too. The tests always get repeated every 3 months so that's covered. But some of them made sense in the context of today. Except the cholesterol but if thyroid now too low then that's a classic symptom. Seriously, who develops antibodies to your thyroid. And why? Happened in my teens.

My fav
https://youtu.be/bueW1i9kQao

 

[wandering_fred]

What competitive sport were you thinking of?
You could consider fencing?????

Fencing in rural WA is considered a necessary evil not a competitive sport....

If you want to take it up I have a couple of kms worth that could use a 25 year update.

Just wandering

Fred

 

[Flying mermaid]

Oh dear. Now the rheumatologist has thrown scleroderma into the mix due to deteriorating raynauds (those ghouly white hands in Dubai love_the_life) and skin issues. Also have to have a skin biopsy so hi ho, back to the Dermatologist we go. Trouble is she says, I am showing symptoms of multiple auto immune issues and she can't define just one. One day they'll reclassify according to process rather than expression. A faulty immune system is responsible.

Anyone had experience with prednisolone? I'm supposed to call her next time I flare which I did recently and go on a course. Plus will need treatment for raynauds to prevent ulcers and then there's possible psoriasis. Most of these things can be treated with methotrexate. And steroi_s. Lucky I'm healthy. Well. Healthy when I started.

oh dear - that's not good . Localised Scleroderma hopefully? Ms FM went to Sydney last month to see Prof Youssef who is supposed to be really across Scleroderma issues and she is having a whole lot of tests done, but she won't tell me anything, because she says I worry too much. Of course I worry twice as much when I am kept in the dark.

Are you getting any hard patches on your skin, or inflamed bits? Ms FM lost all the major muscles in her calf and a nerve, probably because of the localised Scleroderma.

 

[Pushka]

Apparently it's showing up in my hands and feet and along with antiphospholipid syndrome contributed to the high risk DVT. Managed to get a copy of her report to find out it was considered 'high risk'. Dodged a bullet.
There's no real blood test for scleroderma but 95% have speckled ANA (tick) and clinically same % have Raynaulds (tick).

I am knitting myself a pair of fingerless mittens

 

[love_the_life]

I am knitting myself a pair of fingerless mittens

Your are knitting??? I didn't know you were the crafty type.
Would it not be quicker to buy a pair?

 

[Flying mermaid]

Well I do hope it is localised not systemic. The biopsy can confirm localised Scleroderma- it is possible for localised to move to systemic, but quite low - maybe 9%. Ms FM did not have speckled ANA.

Have you tried the heat pack I suggested? I have just bought another two boxes of them for Ms FM.

 

[Pushka]

Well I do hope it is localised not systemic. The biopsy can confirm localised Scleroderma- it is possible for localised to move to systemic, but quite low - maybe 9%. Ms FM did not have speckled ANA.

She's already looking for systemic issues and if it's inflaming blood vessels (DVT in a place that shouldn't get them as there's no 'valves' in the jugular vein) then it's already there.

 

[sinophile888]

I am knitting myself a pair of fingerless mittens

Good on you.
I recently knitted my son a pair of gloves and it almost exceeded the bounds of a mother's love. Maybe there is a easier pattern out there.

 

[Flying mermaid]

She's already looking for systemic issues and if it's inflaming blood vessels (DVT in a place that shouldn't get them as there's no 'valves' in the jugular vein) then it's already there.

sorry to hear that - you are having a terrible run

 

[Pushka]

Your are knitting??? I didn't know you were the crafty type.
Would it not be quicker to buy a pair?

I have many hidden talents . These can be done in a night. I have wool and needles in the closet.

 

[Pushka]

sorry to hear that - you are having a terrible run

Well I mostly feel well. It's the suddenness of some events that come out of the blue. But now the rheumatologist has said I must call her when that happens it's very reassuring.

 

[Cossie]

Got back last night, I had another visit to the fracture clinic today and x-rays, brace for 4 more weeks, more x-rays then, but I can take it off as I please, which is good as that's what I've been doing!
I managed to leave it behind in a hotel somewhere and had to buy a new one in Portugal, this one actually fits!