Katie
Established Member
- Joined
- Sep 21, 2009
- Posts
- 1,911
Update on my ongoing investigations. Saw the Endocrinologist for a followup appt on Weds. Unfornately SNP did the wrong test on my 24hr urine sample (sigh), so she didn't have my urine calcium results, only my blood test at SNP. I did the first test at QML, and she specifically wanted me to go to SNP for the second blood test due to machines/assays/something. Shrug.
At the appt, she gave me referrals for a Bone Density scan. Unfortunately, the QScan ~200m from home was devastated by the Feb floods, and was one of the only centres doing BMDs. She also gave me a referral for a Parathyroid scan, and next year's blood test followup, but I only need to do the Parathyroid scan after the BMD.
She called me yesterday after SNP did the right tests on my bottle of wee, and has diagnosed primary hyperparathyroidism. Likely a wait and see approach, subject to what the BMD scan shows next week. I've started Vit D supplements (Ostelin was recommended) and am being careful about calcium intake.
My Mum's only recently found out about elevated calcium levels, but the good news is that she and my 95yo Grandma haven't had signs of osteoporosis. My "famous" endocrinologist uncle knows Mum's stats, and wasn't too worried for her about them. I haven't updated him on my diagnosis yet.
I think I have to be careful about kidney stones and the like, too. I have forgotten that part of the consult. :/
I probably really need to start making dietary changes for my reflux. Or stop drinking wine. Or both. I forgot to take Nexium for at least a week while I had Covid and was barely eating. I'm back on it now, but waking up every morning feeling nauseous. Blurgh.
At the appt, she gave me referrals for a Bone Density scan. Unfortunately, the QScan ~200m from home was devastated by the Feb floods, and was one of the only centres doing BMDs. She also gave me a referral for a Parathyroid scan, and next year's blood test followup, but I only need to do the Parathyroid scan after the BMD.
She called me yesterday after SNP did the right tests on my bottle of wee, and has diagnosed primary hyperparathyroidism. Likely a wait and see approach, subject to what the BMD scan shows next week. I've started Vit D supplements (Ostelin was recommended) and am being careful about calcium intake.
My Mum's only recently found out about elevated calcium levels, but the good news is that she and my 95yo Grandma haven't had signs of osteoporosis. My "famous" endocrinologist uncle knows Mum's stats, and wasn't too worried for her about them. I haven't updated him on my diagnosis yet.
I think I have to be careful about kidney stones and the like, too. I have forgotten that part of the consult. :/
I probably really need to start making dietary changes for my reflux. Or stop drinking wine. Or both. I forgot to take Nexium for at least a week while I had Covid and was barely eating. I'm back on it now, but waking up every morning feeling nauseous. Blurgh.