I am a member of a cancer support group on Facebook and the vast amount of knowledge there is truly astounding. Most are patients, carers or family posting questions.
Would you mine please PMing me with details of the support group?
I joined a cancer subreddit but things are a bit bleak and dismal in there so I'm kinda steering clear of there for now.
We do not have absolute staging yet as we're waiting on the pathology from his lymphadectomy or whatever it was called from last week.
I'd just be interested in just lurking somewhere else for a little bit longer until we have the path back.
In Mr Scubabe news, we were so insanely lucky last week. He didn't need a skin graft!!! They'd prepared us for the worst but when it came down to it on the table, the amazing surgeons were able to do a direct close which nobody was expecting (including them - they'd told us to prepare for a graft, and maaaaaaaaybe if we were really lucky they might be able to swing a flap close, so to end up with a direct closure was superb news!). Oh, and because we'd just come home from holiday, he got a private room and full on infectious disease protocol! Apparently his hospital is doing an infection control trial on people who've traveled in the past 6 months, regardless of destination; so he got the leper treatment with everyone needing to gown and glove up before crossing the threshold to his room, but we didn't care because it meant he got his own room with ensuite. Team Frequent Flyers for the win!
So because there was no graft, he was released from hospital already and he's currently ensconced on our sofa in a cocoon of pillows in the one position that doesn't make him hurt, popping painkillers every 4-6 hours and working his way through the entire Netflix and Stan catalogs in an attempt to not die of boredom. Yay for 4 weeks of non-stop TV. I think. He's getting sick of it already, but it's not like there's anything else he can do. He's very bruised but his incisions have all stopped leaking now so his body is doing what it needs to in order to get him back to normality. He's frustrated that he can't really use his arm on the side that they took all the lymph nodes, he's dying for a long hot bath but has to be content with sponge baths, and he's upset that I'm not providing said sponge baths in a naughty nurse costume. But oh well, them's the breaks.
